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Privacy Notice

Epilepsy Nurse Specialist Services

 

Introduction

 

This Privacy Notice explains how I collect, use, store, and protect personal information when providing epilepsy‑related clinical advice, care coordination, training, and family support. I am committed to maintaining confidentiality, transparency, and the highest standards of professional practice.

 

Your privacy matters deeply, and I handle all information with care, respect, and sensitivity.

 

Who I Am


Debbie Dean - Epilepsy Nurse Specialist
Contact email address – Debbie@epilepsynurse.org
Mobile number – 07770370205

 

I am the Data Controller for the personal information you share with me.

 

What Information I Collect

 

I collect and process information necessary to provide safe, effective, and personalised epilepsy care. This may include:

Personal and Contact Information

  • Name and date of birth

  • Address

  • Email and phone number

  • Parent/carer details (for children)

  • Emergency contact information

Clinical and Health Information

  • Epilepsy diagnosis and seizure history

  • Medication details and treatment plans

  • Relevant medical history

  • Care plans, risk assessments, and rescue medication protocols

  • Information shared during consultations

  • GP, neurologist, or paediatrician details

Administrative Information

  • Appointment records

  • Training attendance lists

  • Invoices and payment information

  • Communication records (emails, messages)

Third‑Party Information

With consent, I may receive information from:

  • Schools and educational settings

  • Case managers

  • Allied health professionals

  • Local authorities

  • Healthcare providers

​

Why I Collect Your Information

 

Your information is used to:

  • Provide specialist epilepsy advice and support

  • Develop and review individualised care plans

  • Coordinate care with schools, case managers, and healthcare teams

  • Deliver training and professional guidance

  • Ensure safety and appropriate clinical decision‑making

  • Maintain accurate professional records

  • Manage appointments, communication, and billing

  • Meet legal, safeguarding, and regulatory obligations

 

Legal Basis for Processing

 

I process your data under the following lawful bases:

  • Contract: To deliver the services you request

  • Legitimate Interests: To maintain safe, effective clinical practice

  • Legal Obligation: For safeguarding, record‑keeping, and tax requirements

  • Vital Interests: When information is needed to protect someone’s life or safety

  • Consent: For sharing information with other professionals or organisations

You may withdraw consent at any time for non‑essential processing.

 

How Your Information Is Stored

 

I store information securely using encrypted, password‑protected or biometric-protected digital systems. Any paper records are kept in locked storage. Only I have access to your information unless disclosure is legally required.

All data is handled in accordance with UK GDPR and the Data Protection Act 2018.

 

Confidentiality and When Information May Be Shared

 

Confidentiality is central to my practice. Information is only shared when:

  • You give explicit consent

  • It is necessary for safe, effective care

  • A safeguarding concern arises involving a child or vulnerable adult

  • There is a serious risk of harm to you or someone else

  • I am legally required to disclose information (e.g., court order)

  • I discuss my work in professional supervision (your identity is protected)

Where possible, I will discuss any necessary disclosure with you beforehand unless doing so increases risk.

 

How Long Information Is Kept

 

In line with professional guidance:

  • Records for adults are kept for 7 years after the end of care

  • Records for children are kept until they reach age 25

  • Financial records are kept for 6 years for tax purposes

After this period, all data is securely destroyed.

 

Your Rights

 

Under UK GDPR, you have the right to:

  • Access your personal data

  • Request corrections to inaccurate information

  • Request deletion of your data (in certain circumstances)

  • Restrict or object to processing

  • Request transfer of your data to another provider

  • Withdraw consent for non‑essential processing

To exercise these rights, contact me using the details above.

 

Complaints

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If you have concerns about how your data is handled, please contact me directly using my contact details above.
You also have the right to raise a complaint with the Information Commissioner’s Office (ICO).

Helpline number: 0303 123 1113

Website: https://www.ico.org.uk/make-a-complaint

 

 

Updates to This Notice

This Privacy Notice may be updated periodically to reflect changes in legislation or practice. The most current version will always be available on request.

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